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Post-Diagnosis Steps

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PLANNING ISSUES


Early diagnosis of Alzheimer's disease or a related dementia allows individuals and their families to learn more and plan better for the future. Consider:
  • Discussing the disease, its symptoms, the way it progresses, and the range of treatment options with physicians or other qualified healthcare professionals.
  • Telling family and friends about the diagnosis, educating them about the disease and asking for family support.
  • Identifying and participating in community resources, such as support groups, adult day services and respite programs at local Alzheimer's organizations or other community agencies.
  • Seeking support services for primary caregivers and other family members, including support groups, telephone buddies and respite care.
  • Participating in clinical trials.
  • Future planning with regard to treatment choices, legal issues, financial matters, long-term care, and end-of-life wishes while the individual is still able to participate in the decision-making.
  • Preparing advance directives, such as a living will and power of attorney.
  • Reviewing insurance coverage, including health, disability, life, prescription drug, and long-term care.
  • Addressing issues such as safety, motor vehicle driving and living arrangements.
  • Checking out long-term care options, including in-home care, assisted living facilities and nursing homes.
  • Protecting the individual with the disease from physical, emotional or financial abuse.